Advice please

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Advice please

Postby sac1 » Tue Oct 16, 2012 6:49 pm

Hi, im a new member and i suspect i suffer from TMAU. ive had a odour from my nose and mouth for the last 2 years and it has gradually got worse. It started about a year after i was diagnosed with an autoimmune disease but i dont know if it has any link. At the moment, it is constant and being at school age, it is quite tough there at the minute. I first saw Ellie's Food Hospital episode and this was a great help but now i want to know is there any more advice you can give me?

I've taken great comfort from this group already seeing somebody else suffers like me! I look forward to hearing from you :D
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Joined: Tue Oct 16, 2012 6:39 pm

Re: Advice please

Postby bigvern » Thu Oct 18, 2012 5:44 pm

Hi Sac1, :D

if you haven't done so have a look at the videos on the main site, there's also info on there on getting tested which you should do.

Do you have the support of your family - are you able to confide in them?

As an adult who was bullied at school (not for TMAU) I know how tough it can be, are there any teachers you can confide in, I have found over the years that you need the support of others around you

Take care.
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Joined: Thu Jun 25, 2009 5:37 pm

Re: Advice please

Postby sac1 » Sun Oct 21, 2012 6:52 pm

Oh no i haven't but i will do, thank you.

My family are great with it but they cant smell it so it can get frustrating at times trying to talk to them.

I have recently told one of my teachers so hopefully this might help? Im also planning to tell my best friend as i am shutting myself off from having a social life at the moment, wish me luck!

Thanks again :D
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Joined: Tue Oct 16, 2012 6:39 pm

Re: Advice please

Postby egglover » Fri Nov 09, 2012 11:12 pm

Good luck sac1 and I hope you do get courage to confide in your best friend. It would be so good if someone was there to let you know if you are having a good or bad odour day as this might give you confidence to start socialising again. Like you said..shutting yourself off isn't good and why on earth should you as it's not your fault you have this condition.
Posts: 32
Joined: Fri Aug 31, 2012 7:24 pm

Re: Advice please

Postby Weak » Tue Dec 11, 2012 7:13 am

I will tell you right now that Ive had TMAU since I was born, or atleast as young as i could recollect. Elementary school was ok, Im not even sure if I had it back then, middle school was horrible, freshman year in highschool was ungodly then things turned to quite well afterwards when i just inadvertently threatened to beat up anyone who made fun of me, helped that I was on the football team. And being a funny class clown type definitely helped.

There are many different ways to approach the situation and to say that anyone way is better than another doesn't to justice to the complexity of it. The best advice I can give you is make friends where you can, be nice to those who are nice to you, and dont be openly hostile to anyone, people in glass houses shouldnt throw stones but I am sure that goes without saying. And watch alot of comic stand ups and sitcoms, a good sense of humor will work miracles for you. And it also takes a certain level of apathy to get through this, apathy is going to help you get through the times that can feel unbearable, or atleast that is what worked for me.

Best thing you can do is go on the diet and pray it works, if not then find something you enjoy doing and do the heck out of it, for me that's games,reading and exercise...

Im not sure if what I just said is good or bad advice, but thats just what worked for me, well its hard to say if it actually "worked" or not.
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Joined: Thu Mar 08, 2012 3:39 pm
Location: College

Re: Advice please

Postby sac1 » Thu Dec 27, 2012 9:09 pm

Thanks for your replies. I have phases where my odour settles for a few weeks and I am having one at the minute so have been able to social at christmas for once! My friend swears she has never smelt it which isnt ideal but its great to have someone who understands how I'm suffering. It also makes me more comfortable around her knowing she can't smell it.

Weak, I do consider your advice helpful. Luckily I do have a sense of humour but when I'm having a bad day I don't let myself talk as the odour is from my mouth so being a class clown isn't always easy! Your post has made me realise I should do the things that make me happy and calm down a little about my odour and just work towards eliminating it.
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Joined: Tue Oct 16, 2012 6:39 pm

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