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Postby Scenless » Tue Dec 07, 2010 4:58 am

Last edited by Scenless on Thu Jun 27, 2013 11:22 pm, edited 2 times in total.
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Joined: Tue Dec 07, 2010 4:33 am

Re: Hear Me

Postby Scenless » Tue Dec 07, 2010 5:31 am

It's nice to know i'm not alone
Last edited by Scenless on Wed Dec 08, 2010 1:55 am, edited 1 time in total.
Posts: 12
Joined: Tue Dec 07, 2010 4:33 am

Re: Hear Me

Postby magsie » Tue Dec 07, 2010 6:10 am

Hi Scenless,

I'm glad that you've found this forum where other people can well understand the torment you're going through
and the difficulty the odours cause in your life.
Have you been tested for TMAU because that could be the reason for your problems. Although it has the sub-tag of fish odour syndrome, there are a far greater range of odours that people suffer from with this condition, dependent on the amount of choline &TMA in your body at the time. Have you noticed that the odours are worse if you've eaten fish, eggs, red meat, or been drinking coffee, alcohol. Because many people find that by avoiding these foods we can gradually gain control of our odours, and you may be lucky enough to get total control.
Some of us have a constant odour that can be fishy, urine, fecal, burning rubber, cheesy, toxic smoke, sick smell,
others suffer from sudden uncontrolled bursts of very strong odour 'stink bomb' style, where we can suddenly be engulfed in a bad odour which stinks out the whole room for a while, then fades away again. People may think we've soiled ourselves, but its just a foul gas that escapes, & not like normal flatulence so there's no sense of pressure & no chance to hold it in.
You're young and if you could get a diagnosis now at least you know what you're dealing with and you can endeavour to get it under control & keep it at bay.
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Re: Hear Me

Postby Scenless » Wed Dec 08, 2010 1:55 am

Thank you Magsie. I feel awful. You have cheered me up.
Posts: 12
Joined: Tue Dec 07, 2010 4:33 am

Re: Hear Me

Postby kittycat » Wed Dec 08, 2010 10:21 pm

You're not alone now scenless, you've got a whole new bunch of friends on this forum, who have all been thro everything you're going thro.
You sound at the end of your tether, you must go to your doctor and ask for help. love kittyx
Posts: 468
Joined: Mon Aug 16, 2010 9:19 pm

Re: Hear Me

Postby hope » Wed Dec 08, 2010 11:21 pm

I completely understand how you feel. You are not alone.
I, like you was at the end of my tether, so I decided to join this forum and actively make moves to try and treat this problem. I decided to press my GP for an appointment to see a specialist. I got an appointment and Iam currently waiting for the results.
Whether they come back positive or negative I KNOW that this is not my fault, something in my body is not working right and I will not beat myself up about it any more.
I promise you that when you read the stories on this forum, you will find an inner peace and a new found strength because this you will understand that this is a medical problem....it's not your fault!

My boss walked into my room and said the class smelt like fart, so just to shut him up I gave him more information than he needed. I even went into how many colonics I had, all tongue in cheek,of course, but I think he will think twice before he tries to be spiteful.

People know exactly what they are doing when they make remarks, but because I understand the condition a bit more it takes the shame away a bit.
Don't get me wrong. i have some excruciatingly embarrassing, awkward situations, like the train ride home after eating a high choline diet for my tests. I stank to high heaven. A guy held his nose while his girlfriend proceeded to screech out in laughter for about two stations. It hurt, but becaue I understand it now I can brush it off very quickly.

Keep your head up, get help, keep on talking to us and know that you are not alone.
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Joined: Sun Jul 25, 2010 8:46 pm

Re: Hear Me

Postby bigvern » Fri Dec 10, 2010 9:47 pm

+1 - you are definately amongst friends here..
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Joined: Thu Jun 25, 2009 5:37 pm

Re: Hear Me

Postby Scenless » Thu Dec 16, 2010 10:43 am

I feel so ashamed of myself this morning. I had little sleep last night. I sat there all night thinking about how my life could of been had things of been different. This is something I do alot. I know I sound pathetic with all the self-loathing but i feel defeated and weak.

I fell in love with a girl earlier in year, i tried to make a go of it despite living with this plus the mountain of other shit that is my life (believe me, there's alot). Initially it went okay but after a few weeks it inevitably started to put a strain on the relationship. Mainly because i'm not open enough about it. I'm so closed up and in knots all of the time. I was hoping that by some miracle it would work out and we could talk about it and she would understand. I'm just not strong enough. I feel so angry that she couldn't talk to me about it as i knew she knew. She spoke to her friend about it, i know as one night something happened while i was at her friends house that embarrassed me. Her friend is very open and made a subtle gesture by showing me something in a book. I felt angry that she would talk about this amongst friends and not me - her boyfriend. It hurt me, but at least her friend had some balls to confront me with it. I don't blame her. I don't blame anyone for their adverse reactions. I wonder how I would react if the shoe was on the other foot. I know I would be understanding and would want to help, but you can't vouch for the rest of society can you.

I'm a great guy. People tell me this. I know this. But I feel so utterly ashamed of myself and am not sure that there's any hope left. I am one screwed up dude. Even though i'm amongst people here that can relate, i still feel alone with this. We've all got our cross to bear, i know. But this is one cross that I don't think i can bear any longer.
Posts: 12
Joined: Tue Dec 07, 2010 4:33 am

Re: Hear Me

Postby Lisa » Thu Dec 16, 2010 11:04 am

hEY, YOU MUST HANG ON IN THERE, i'M SURE MOST OF US HAVE AT SOMETIME FELT THE WAY YOU ARE THINKING, i KNOW i DID. Ooop caps. But what you have to remember is, there is alittle light at the end of the tunnel. You're only young, and have your whole life ahead of you. You will be able to manage this. I am. Have you seen a GP, dietician? That should be your first step. Try the diet, pills etc, you never know. But you have to give it time to work, you must persevere, you will get there. As for the girlfriend, she obviously wasn't right for you, and I do believe you will find someone. Keep your chin up, we are all thinking of you.x
Posts: 412
Joined: Tue Jul 06, 2010 10:35 am

Re: Hear Me

Postby Scenless » Thu Dec 16, 2010 11:14 am

Thanks Lisa. You know I'm still so paranoid about it that at the back of my mind I'm thinking 'is there anyone i know that might come to this forum and recognise who i am'. I've got a long way to go yet.
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