webinar sunday 19th Aug 6pm UK time

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webinar sunday 19th Aug 6pm UK time

Postby PoetFire » Sun Aug 12, 2012 3:31 pm

RareConnect and members of the TMAU community are pleased to announce a series of webinars from experts/researchers of Trimethylaminuria (TMAU) and the Flavin-containing mono-oxygenase 3 enzyme, to be hosted on Sundays, beginning on Sunday August 19th at 6pm GMT (UK time), with a presentation from members of the TMAU community and Rob Pleticha, Online Communities Manager at EURORDIS presenting the TMAU Online Community.
Details:
Sunday, August 19th 6pm GMT
On Sunday, log in: https://eurordis.adobeconnect.com/_a830 ... mmunities/
Enter as a Guest, no password required
The ‘People’s webinar’
The first webinar will have guest speakers from members of the TMAU community, along with Rob from EURORDIS who is hosting the webinar.
Each guest will speak for about 10-15 mins then will be open to questions from the viewers. The guests for this first webinar are :
Robert Pleticha : Online Communities Manager at EURORDIS describes the International TMAU Community on RareConnect
Karen : Popular community member and UK campaigner on metabolic malodors will provide a talk : “Is it possible to use the media effectively in odour sufferers' struggle for human rights”
Cheryl Fields : Long-time friend and helper of the TMAU community. Will provide a talk : “Having The Power To Endure: Obtaining & Retaining Employment With TMAU"
Notes about the webinars :
The webinars will be recorded and archived for viewing at anytime.
The platform for the webinars is Adobe Connect. This means you need flashplayer installed, which is very likely already done if you can view YouTube videos. All slides will be viewable in the webinar meeting room and all audio will be from the computer. Meaning you need speakers or headphones working properly to hear the presenters. If you would like to ask a question or make a comment, you may do so by your computer’s microphone or through a text chat box.
To test your computers settings before the webinar, visit: http://helpx.adobe.com/adobe-connect/kb ... eting.html
Note : The capacity of the webinar system is limited to 50 attendees. Please enter the webinar room early to ensure your space.
PoetFire
 
Posts: 290
Joined: Fri Jan 15, 2010 10:23 am

Re: webinar sunday 19th Aug 6pm UK time

Postby PoetFire » Tue Aug 14, 2012 4:48 pm

Unfortunately Cheryl cannot make it as she has other unforseen circumstances to see to.

The 19th Aug TMAU/FMO3 webinar will still go ahead with Karen talking, and Rob the online communities manager at Rare connect. Rob works for Eurordis

Note : the webinar will be recorded so do not use your real name to enter the room if worried about privacy

The webinar room is here
https://eurordis.adobeconnect.com/_a830 ... mmunities/

Read more: http://breathandbodyodour.proboards.com ... z23XXXKT4O
PoetFire
 
Posts: 290
Joined: Fri Jan 15, 2010 10:23 am

Re: webinar Tuesday 21st Aug 5pm UK time

Postby PoetFire » Tue Aug 21, 2012 1:20 pm

unfrotunately webinar was cancelled yesterday too

it will almost certainly happen today (Tuesday 21 Aug) at 5pm UK time (noon EST).

TMAU/FMO3 webinar number 1 :

speakers
Karen from the community : the importance of the media for raising awareness

Rob Pleticha of Eurordis and rareconnect.org on how rareconnect can help rare disorder communities

Webinar will be recorded

Webinar room is here : https://eurordis.adobeconnect.com/_a830 ... mmunities/

everyone welcome. use a nickname if worried about privacy (or just call yourself 'guest'). Enter as a guest.
PoetFire
 
Posts: 290
Joined: Fri Jan 15, 2010 10:23 am


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