Where do we all live ????

general questions and discussions

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Re: Where do we all live ????

Postby chocomaid » Thu Feb 02, 2012 5:56 pm

Hi Maisie in live near Camborne where are you !!!
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Re: Where do we all live ????

Postby Maisie » Thu Feb 02, 2012 7:24 pm

Not a million miles away. I live near Truro.
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Re: Where do we all live ????

Postby chocomaid » Fri Feb 03, 2012 1:24 pm

Hi Maisie...I have just been diagnosed with tma on my first test waiting for another test to come back b4they can do a blood test to find out if its tmau1 or 2 then the dietician...Trying to find out as much as poss about it all but it seems to be quite a mine field :? ...its nice to be able to talk to someone about it and is going through it themselves...how long after you start the low choline diet do things start to calm down a bit...i find at the moment i am virtually house bound because of the shame of it :oops: ...i really need to start socialising again...It will be nice if we could meet up in perhaps a couple of months :)
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Re: Where do we all live ????

Postby Maisie » Sun Feb 05, 2012 12:35 pm

Hi Chocomaid

I know how you feel, sometimes it's easier just not to go out rather than face everybody. I don't know if you go out to work or not but sometimes I find it a challenge just to get out of the door in the morning knowing I have to face everybody. I do it because I need to earn a living but it's hard sometimes. If I feel that I'm having a bad day, I just tell myself that they'll have to put up with it because it's not my fault. My family (who all say they can't smell anything, as does my doctor) say I should tell them what's wrong with me but it's a very hard thing to do. I haven't quite managed to psyche myself up to do it yet! :oops:

Because the low choline diet is so hard to stick to I can't really give you any advice about how long it takes to calm down. Everyone is different and some foods which are ok for one person won't be for another. There's a lot of trial and error in it. I find Nullo, charcoal and all the various supplements don't seem to help me at all so have stopped taking everything apart from a probiotic and a multivitamin. I'm coming round to the idea that maybe sugar is a trigger for me and have been looking at the Candida diet. I find now that the only meat I can eat (and only about an ounce and a half at a time, perhaps twice a week) is turkey.

If you want to send me a private message then please do. This condition is very demoralising to live with.

Sorry to everyone for hijacking the "Where do we all live" section!

Maisie x
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Re: Where do we all live ????

Postby drstillstanding » Mon Feb 06, 2012 7:10 pm

I live in Kansas.

But I plan to visit (extended visit) to the UK in September 2012.

I am so excited, I have never been, so it should be a wonderful experience for me.

I have never traveled internationally before.

I am excited and I am going to try to make it happen this year.

Thank you.

Very Sincerely,



Cheryl Fields
Dr. Stillstanding-Somehow
2535 S.E. Adams Street
Topeka, Kansas 66605-1232 (USA)
(785)-286-7005, Home/Voice-Mail
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Re: Where do we all live ????

Postby Summer0408 » Tue Mar 27, 2012 8:00 pm

I'm 18, live in Stanford le hope in Essex
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Re: Where do we all live ????

Postby anne1985 » Sun Apr 22, 2012 12:57 pm

Hi Everyone,

I am new to this forum, i have just moved outside of London, i was just wondering if there was anyone from the London area that wanted to chat?
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Re: Where do we all live ????

Postby mayday » Wed May 09, 2012 8:20 am

reply from shanghai.
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Re: Where do we all live ????

Postby Weak » Tue May 15, 2012 2:49 am

live in the United States :( does anyone else live out here, seems like all of you guys stay in the UK
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Re: Where do we all live ????

Postby atlantis » Thu May 17, 2012 8:39 am

Hi everyone , first time ever posted a message am living in epsom would really like to meet up with someone else who is living with this . In early stages of gettin a diagnosis but have had it over ten years now.
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