Getting tested

help with getting a diagnosis

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Re: Getting tested

Postby smelly » Wed Mar 09, 2011 4:15 pm

me again kittycat, when someone seems to know what they are talking about its like a shark feeding frenzie so sorry for the mauling of you r brain but Im huuunnggrryyy for answers! :mrgreen: which part of the TMAU test results lets you know if the liver is functioning properly? or is that just froma general liver profile (I think I had that done when took my blood at gastro, and they would have said if there was anythinng wrong, but I suspect that a bad result fromt he test would indicate someone very ill from liver disease rather then just a sluggish liver?)
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Re: Getting tested

Postby flower » Wed Mar 09, 2011 7:04 pm

Hi Smelly,

I think before testing we must eat some fish or choline. How can they know otherwise if we can convert trimethylamine or not ? I eat one egg and some beans monday before testing.
This is the last test that I am going to do because it's a lot of money.

I will also do a test eating low choline and having not my periods. Maybe my results are better at that moment.

But I will just know if I have still tmau or dismished. That is the only thing I will know.

I hope you get the answers soon. I also want to know if I am a serious case of tmau or not but if we want to know this all we have to do a lot of testing I suppose. Maybe some periods I am a serious case and other times not ?

Take care of you,
Flower
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Re: Getting tested

Postby kittycat » Wed Mar 09, 2011 8:42 pm

By the way Jackal, when you've got your referral for a test, it might be quicker to get the special bottle from the hospital path lab, do the specimen, and tell them it has to be tested in Sheffield. That's the only lab doing tests but the receptionist can look it up and send to them. It might save time...

Hi smelly, nice to see you :D ... A fish meal doesn't give a false POSITIVE result, in fact it gave me a false NEGATIVE! but it seems we all have fluctuating results anyway. I think we need a low choline diet because the liver, trying to convert TMA into TMA-n-oxide using FMO3 enzyme, is under stress. My Gastro man was also showing signs of stress at my questions because, as he said, there's been no research done and they really don't understand what's happening to us. He said that they THINK that lacto....strains of good bacteria are most helpful. And even then they don't destroy the bad ones, they just drive them out and have to be constantly replaced. He said the members of this forum know more than he does :? So we all have to just keep our eyes peeled for any info that we find. (But don't overdo it and get worn out)
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Re: Getting tested

Postby smelly » Wed Mar 09, 2011 8:46 pm

Flower I think you are right, the way to know the full story is to test under different conditions to know the range of the odour under different conditions. Good luck with your testing, :)
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Re: Getting tested

Postby smelly » Wed Mar 09, 2011 8:50 pm

Oh thanks for getting back on that kittycat. For a bit there I thought I might not actually have TMAU because i was told to eat fish before test that resulted in very high positive, so it might have been a false positive. Oh well, never mind :cry: :lol:
smelly
 
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Re: Getting tested

Postby smelly » Wed Mar 09, 2011 8:58 pm

And i fully appreciate the stress of your gastro. I actually feel embarrassed asking too many questions because I know they are probably relying on us to give them feedback and we cant tell them because we cant smell it. Talk about the blind leading the blind. I think Im going to give my brain another little rest from the medical worry and just follow the anti candida diet again for a few months. At least with that I can follow a menu plan and take my medication without having to think. :)
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Re: Getting tested

Postby kittycat » Wed Mar 09, 2011 9:14 pm

It's the Urine Creatine part that tells them how our livers are working, I've not had blood tests.kkx

Hi flower, I always thought that my odour was worse during the period because my temperature was higher, I felt nervous/stressed/bad-tempered, but mainly due to the extra excretions being expelled. I should think the hormone that most affects me now is adrenalin, nervous sweating around strangers. It's the Pavlov's(?) Dogs Syndrome....only we don't slobber.
I think talking on this forum has really helped you come to terms with TMAU, if you remember how stressed you were when you first joined. You're probably obsessional by nature, my partner's the same, he goes on and on...and I just have to say ENOUGH!!! like your husband does to you. :lol: He's also sociable and loves people like you do. I hope your last test shows that you're diminished...kkx
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Re: Getting tested

Postby flower » Thu Mar 10, 2011 8:25 am

Thanks Kittycat and Smelly,

Hope the tests have some value for specialists too.

But not always easy to interpretate I guess because of tmau building up in our systems and maybe other factors like hormones and stress.

You see me as a obsessive person, Kittycat.
When people see me for the first time I give a very calm impression....I always thought....

But always was in a state of panic when I had examinations to do....
And have been one time in my life totally broken because my oldest brother died in an accident ten years ago, I don't know anymore how I survived the days after and every time we were together I felt that there was someone missed....I heard my father still saying on the phone : your oldest brother isn't there anymore....
And also the tmau overwelmed me, maybe because I doesn't have everything under control 100 procent, I don't know why ? and maybe because I thought everyone is going to leave me because of this....
But now I know this isn't true, there are still people and friends in my life who are very important. So I can leave this obsessive thoughts I hope.

I hope your can do the test, j

Flower
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Re: Getting tested

Postby kittycat » Fri Mar 11, 2011 11:50 am

Hi flower, it was a question really, more than how I see you. Just gleaned from things you've said....I hope you didn't see it as criticism, as it wasn't...you were worrying about being manic depressive in another post....
I'm so sorry that you lost your brother in such a shocking way, it's bound to affect your feeling of security. I'm sure you were the best sister, and he'll be watching over you. My dad left us when I was 2 and it affected me the same way....never trusting, and standing too much on my own two feet! I think it took away some of my femininity of not needing protection...and I never learned to wrap a man around my little finger...dammit! love kittyx
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Re: Getting tested

Postby flower » Sun Mar 13, 2011 7:21 pm

Hi Kittycat,

I don't see you as a critical, I like your comments...
Your interpretation about me is maybe evident ...and maybe sometimes truth.
About being obsessed, I am totally obsessed about tmau, but I think I must give it a place. Just working on my diet at the moment.
About my brother, I gave it a place in my life but I wish he was here, He had always an answer ... but I loved him very much and still...
About manic depression, I don't think I have this, I am even sure I have this not, but I have some dephts before menstruation. But fighting against this is not helping me, it makes it even worse. So, when I have this I take time for my self and just being settled with a nice roman or something on my own and it will go away or listening to some beautiful music.....

Take care of you, Flower
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