Getting tested

help with getting a diagnosis

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Getting tested

Postby Jackal » Sun Feb 27, 2011 7:02 pm

how do i get the tesing kit from sheffield hospital because last time i checked the site was shut down.

could i have tmau 1 or 2 i got it around 14-15 so puberty im guessing and i don't think any in family has it but don't know.

thanks
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Re: Getting tested

Postby smelly » Sat Mar 05, 2011 9:07 pm

I was told by specialist it doesnt matter whether 1 or 2 , treatment is the same (probably outlook as well). Get tested at Sheffield lab via referal by GP (whether paying for it privately or getting test free on nhs). Someone tested by a private lab (do a search on this site top right of page).
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Re: Getting tested

Postby smelly » Sat Mar 05, 2011 9:48 pm

Actually search box wasnt that helpful :lol: but I looked over early posts and found private lab name was MULLHAVEN MEDICAL LABORATORY and when i googled it details came up with address etc so i suppose you could contact them to check if they still do the test, if no on here who used it posts
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Re: Getting tested

Postby PoetFire » Sat Mar 05, 2011 10:15 pm

Unfortunately Mullhaven closed down
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Re: Getting tested

Postby smelly » Sat Mar 05, 2011 11:24 pm

:shock:
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Re: Getting tested

Postby Jackal » Sun Mar 06, 2011 10:39 am

thats what im saying that was the only one i knew

now i dont know how to get tested
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Re: Getting tested

Postby Maisie » Sun Mar 06, 2011 5:47 pm

Hi Jackal

I got my test done at Sheffield via my own doctor. The urine sample was sent to our local hospital to have the acid added and then sent on. That's probably the easiest route.
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Re: Getting tested

Postby kittycat » Wed Mar 09, 2011 12:02 pm

Hi Jackal, I originally tested via Mulhaven, but they advised a fish meal before testing, which gives a false result. I just had another test, free by NHS, after seeing a Gastro specialist in local hospital. He wanted a test done on my usual low choline diet. It came back with low TMA-N-Oxide, but the TMA was much higher than with the high choline diet. So, at that moment, I would have been smellier than the first test, done after a roast beef dinner the previous day and mackerel lunch, two days before. :? Having said that, the low choline diet has helped the most, it's just that my TMA doesn't necessarily get expelled over the couple of days after a naughty meal, like I thought it did.... Also, a test will tell you whether your liver is working properly. Mine's working well, so I don't need milk thistle/B2 etc. Also the second test proved that I have TMAU2 which is such a relief to know, as my doc was 'not convinced'...... Shame that my mum and sis went to their graves thinking I was suffering a paranoid mental illness :evil: I shall expect a full grovel when I see them again :D I hope your doc is sympathetic and lets you have a test on the NHS. He might, if it makes you go away :lol: love kittyx
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Re: Getting tested

Postby smelly » Wed Mar 09, 2011 4:01 pm

kittycat,

does eating fish before test give a false POSITIVE result? I heard someone on here say before that it alters the result, but when I asked if they meant it gave a positive result ,which is wrong, no one replied so I never found out if that meant my result might be wrong. I have recieved 2 completely different test results so this could be quite significant for me (if i can remember if I ate fish before the first one, and work out what it means!) And when you say you had a high TMA reading when you were eating low choline, does that mean that any odour you were emitting was result of overgrowth of bacteria rather than the way your body handles 'normal' food? But then why do you need a low choline diet? Heck im confused!
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Re: Getting tested

Postby smelly » Wed Mar 09, 2011 4:09 pm

And kittycat, the idea of TMA (or whatever) not being expelled from body over couple of days after eating is something I would say is true for me. I think its been a common idea to try and eat normal food at the weekend so we can prevent malnutrition! and we can get it out of system before we have to go back to work, but in reality thats not been the case. I know I have had bad reactions out of the blue when eating very blandly, so it is probably more of a build up thing, and like a see saw, it gets to a certain point and it tips in the other direction and out comes the smell without warning. Either that or its controlled by hormones, so you get a sudden surge of a certain hormone for whatever reason and the odour is expelled. The only time I can really see a cause and effect to do with food has been after eating sugar, dairy, maybe even cereals/wheat. Oooo confused :x
Last edited by smelly on Wed Mar 09, 2011 9:01 pm, edited 1 time in total.
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