Hello,
I was recently diagnosed with Secondary TMAU. I'm now being seen by a Genetics Metobolic doctor. The doctor knows a little less than I do, but she is doing her research and I'm very thankful for that. I've been trying for the last year to convince doctors that I have an odor that seems to be coming out when I exhale. I was told it was my perception and it wasn't really happening. I began to research on the Internet and I came across TMAU testing. I ordered the urine test and it came back positive for secondary.
I've been trying to find a list of symptoms other than fish odor but its been difficult because a lot of post are dating back a few years and I can't find anything recent. So I'll list my symptoms and hopefully get responses. Most of my symptom have come on in the last 14 months(2-8)....
1) Foul smell released in exhaled air. Comments from those around- what's that smell, it smells like poop, it smells like a sewer line busted, who passed gas...
2) Left hand has put off a fish odor 3 times.
3) Right armpit puts off stronger BO smell.
4) Smelly scalp of a verity of smells from cheesy, yeasty, wet dog, garbage, oily body, and sulfur.
5) Face is oily with a strong odor.
6) Excessive bloating, horrible smelling flatulence of rotten eggs.
7) Metallic taste in mouth never going away. It feels as if I have a chemical radiating from the roof of my mouth and edges of tongue.
8) Stomach issues coming on now
I know some of these are common with TMAU. I haven't really heard anything regarding the scalp and or a metallic taste in mouth? Any info would be greatly appreciated.