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PostPosted: Mon Apr 09, 2012 1:53 pm
by amber
Hi I'm amber.I have been struggling with severe body odour (really don't want to write that!) for 25 yrs now and have spent the last decade predominantly on my own and hiding behind my own four walls - I don't want to spend another ten years doing the same thing. X

Re: introduction

PostPosted: Tue Apr 10, 2012 12:07 am
by Glasgowguy
Hi Amber. I'm also new to this site. I've been suffering for 20 years with this condition. Lately I seem to be feeling more depressed over it. Since I got diagnosed actually. I think before that I always held on to that it will clear up and go away. Since it seemed to come on from nowhere. Anyway. Hello everyone. I was diagnosed with tmau last year. I don't have it as bad as some people on this site. I have a lot of friends and a good social life. Unfortunately I have just ended a long term relationship through the stress and depression of the up and down days. Which she couldn't understand as she couldn't smell anything. I'll be posting some stuff that helped me over the years. And I hope one day we find a cure for this condition.

Re: introduction

PostPosted: Wed Apr 11, 2012 10:32 am
by Summer0408
Hi Amber and Glasgow guy,

I too havent been on this forum for very long and nor have I been suffering for too long however I know what it's like to suffer from depression on the down days - sometimes the 'down' parts last for just a few hours but other times it lasts a few weeks! I think we can all say it affects our confidence massively, I will wake up on some days and think 'you know what Im not going to let this bother me today' but I get to work and all that confidence just goes away!!

The worst thing for you to do Amber is to hide away, on the days that I hide away and feel sorry for myself I then think I've wasted a whole day not doing anything that needed to be done that day and it makes me feel worse! You need to get out there and enjoy life, I have a little saying for myself, which keeps me motivated in whatever I'm doing so it could be for tmau or it could be trying to make sure I study for exams at university but it's, 'you only get out of life what you put into life' - it just reminds me that you have to make things happen for you (granted not everything but the majority) and yes its a little cheesy!

I'm not saying I'm blissfully happy and have no worries, ( i worry about tmau nearly every day) but I reserve time for my worries and stressing over it, so then I can say to myself , 'right, I cant think about tmau for the rest of the day' and generally it works!

I hope this reply isn't too rambly for you but its nice to hear others thoughts!
Private message me if you ever need to!


Re: introduction

PostPosted: Wed Apr 11, 2012 11:55 pm
by Glasgowguy
I totally agree summer. Sometimes you just have to suck it up. And think of some people that have it a lot tougher than us. Right now we are all trying to find a cure for this but I think in the meantime we should try seeing if we can suss out what makes us smell of different odours. For instance red meat and spices makes me/us smell of fart. Dehydration makes me smell fecal sometimes. If i smell the fecal smell when im outside then i drink as much water as i can and it usually goes away.But sometimes I smell of cannabis or cigar smoke. Even bacon before. When I get the cannabis or smoke smell nobody ever minds. I have even heard people say i love the smell of a joint. Somebody likes the smell of a TMAU output. Bet you never thought someone would say that.So maybe we could try working out what triggers our bodies to emit a different odour and make us more acceptable. Capturing what makes us smell of smoke would make our life's a breeze ;) .

I have also found that neovite colostrum milk is the best at regulating my insides. It makes me feel like everything is working on all cylinders. Pricey though. But definitely the best probiotics on the Market in my opinion. While all the other probiotics of the shelve hardly do a thing. I found threelac or now fivelac is really good at regulating thrush throughout my body. I don't have bad thrush but more I get tingly nippy inside of my nose. My lips sometimes and the naughty bits haha. If your groin area smell of fecal. It's usually swamp ass. I always have a bath after the toilet. If the groin area smells funky. A course of candida cream usually gets It smelling back to normal. I reckon the feeling of sometimes not fully evacuating is because our insides are constantly inflamed and swollen from not breaking down TMAU properly. Colostrum milk seems to sort that problem out though. Anyway I'm rabbitting on and I'm going to start a new topic with some questions I have for others and any things I can think of that have helped me get by day to day. And live as normal a life as I can.

Re: introduction

PostPosted: Mon Apr 16, 2012 8:47 am
by lovelee
Hello everyone!! So glad to not feel alone ive been going crazy some days i can igmore it nd go on with my life but some days i just cant but having friends who can relate to me would help!! so im glad i found this site [=
btw about diff foods ive realized sweets anything basically with sugar is a big NO and read meats and spices as well, and now that you mention dehydration i have realized that does bring a poop smell /:

So what kind of diets are you guys on or what helps best???

hope to hear from you guys soon (:

Re: introduction

PostPosted: Mon Apr 16, 2012 11:20 pm
by Glasgowguy
Hi lovelee,

I don't follow a strict diet. I sometimes believe it's more complicated than that. Eating a low coline can still get bad reactions. And I find it makes me lose so much weight that makes me look I'll. So I just eat what I want. Try and never eat red meat. Except the occasional big mac. And I avoid spicy curries. But have a cheeky one sometimes on a hangover day. The sugar is a funny thing for me. I drink tea or coffee most of the time or a nice latte. And I have cans of coke all the time. I don't feel a bad reaction from sugary stuff except my mouth feels horrible like I want to go brush my teeth. The best thing for me that helps is going to the gym and doing excersise. Then go to the sauna and steam room to sweet some toxins out. The sauna is a definate must for keeping any bad smells down. I wonder if it's the combination of sweating and drinking lots of water while sitting there. Maybe the water helps to digest anything in your stomach and the sweat pushes out the tmau. Creating some harmony. Going to the sauna on a hangover day makes me feel that bit more confident for the bad day or two I get after drinking.