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Hi

Postby Dom » Fri Apr 15, 2011 6:34 pm

Hi.

I'm Dom and i'm 15, and pretty sure that i have TMAU. I haven't been tested but do smell for no apparent reason. I find it hard to talk about it to anyone, no one knows, i even told my mum once, but she just dismissed it as me just being silly. At various times since it started i have showered around 3 times per day, thinking it would make a difference.
I find it really hard coping with this, i have had people comment on it before, of course no one knows that i can't help it at all. I still have good friends that don't comment, as my smell is not a sort of one that fills the room, and it is not constant. Sometimes it is really bad, but it is every day. It's really embarassing that i have this for me to be around some people.

My smell is also not the 'Fishy' type that people seem to usually have. It is more the 'Sewage' type that people seem to have.

I just need help and advice about what to do. I really need help. I don't know what to do.

I want to live my life how i want to. I want to do things i've always wanted to do, but i'm finding it really hard to live out my dreams. I've only got one life to live, and i intend on living it.

Yours
Dom
Dom
 
Posts: 10
Joined: Fri Apr 15, 2011 6:17 pm

Re: Hi

Postby flower » Fri Apr 15, 2011 7:51 pm

Hi Dom,

Go to a GP , and do the test.
You have your whole life to live,
You can take dicisions now what are important for your further life....

Think about what profession you want to do : mason, plumber, veterinarian, ....it will make your life much easier....
Don't tell your whole life on this site because otherwise people call you DOM.

note : DOM = STUPID (in netherlands you call someone dom when he is stupid)
Where are you from ?



Take care of you,
Flower
flower
 
Posts: 232
Joined: Wed Nov 17, 2010 1:15 pm

Re: Hi

Postby Dom » Fri Apr 15, 2011 8:20 pm

I'm from England.

My chosen profession is to be in the Army as an Officer. After several hard days fighting, everyone end up smelling :)

Seriously though, it is something i have wanted to do all my life, and there's almost nothing i'd rather do.
Dom
 
Posts: 10
Joined: Fri Apr 15, 2011 6:17 pm

Re: Hi

Postby flower » Fri Apr 15, 2011 8:30 pm

Sorry about my note,
It is nothing personal,

but strange that you use some words in netherlands,
you say three times per day instead of three times a day....
I almost believed you are from the Netherlands, Belgium....

must be paranoia ???? or not.
flower
 
Posts: 232
Joined: Wed Nov 17, 2010 1:15 pm

Re: Hi

Postby Dom » Fri Apr 15, 2011 8:36 pm

Well the people in the Netherlands often speak much better English than we British people do!
Dom
 
Posts: 10
Joined: Fri Apr 15, 2011 6:17 pm

Re: Hi

Postby flower » Fri Apr 15, 2011 8:47 pm

just want to say,

When you are emotional, talk to people you can trust,....
your family, mother, best friend,
don't say it to people you are not very close with...
When you need professional help, don't be shamed.

follow protocol and try to live the life you want...
But maybe you must think about the profession now and make it easy....

Do as normal as you can and be glad with the things you still have, don't think about the things you can't change....and make life as easy as it can be...

Flower
flower
 
Posts: 232
Joined: Wed Nov 17, 2010 1:15 pm

Re: Hi

Postby Dom » Fri Apr 15, 2011 8:51 pm

I enjoy life, i honestly do, i do almost everything i possibly can. It's just remembering every so often that i have this thing i cant change. However happy I may feel, it is like being trapped in a box i cannot escape from.

It is possible to enjoy life with this problem. And like everyone on here, i'd rather not have it. But is there anything i can do to lessen the smell, apart from the diet?
Dom
 
Posts: 10
Joined: Fri Apr 15, 2011 6:17 pm

Re: Hi

Postby kittycat » Fri Apr 15, 2011 9:51 pm

Hi Dom, welcome to the site. Like flower says you do need to take the Tmau test, and if you have Tmau you should get more help and probably be referred to the top specialist. I'm afraid that will mean a strict low choline/sulfur/yeast and sugar diet, and probiotics/B2/milkthistle regime until they find the cure. Go to the doc soon and you'll get it under control before it interferes with your ambitions. There's worse things to suffer with...my friend's lively daughter has MS and spends months at a time in a wheelchair...we're the lucky ones :D
I suffered for years with fish odour but have now got it under control....I just went on a holiday where I spent all day travelling in a mini-bus with strangers :shock: ...While they tucked into Full English, I ate cornflakes with the rice milk I'd sent to the hotel by parcel post. The evening meals were inedible for a Tmau sufferer, so I had a dry jacket potato with a bread roll. For lunch I had raw carrots and apples with water :cry: I did have a couple of vodkas every evening (Miles said it destroys TMA in the gut :lol: that'll do me!) I missed out on all the lovely fish and lamb on the menu, but my reward was a fab holiday, no-one opened the mini-bus windows and actually vied to sit next to me. :D So it can be done, you just have to be very tough with yourself when you're around strangers. We need a Tmau version of ' Once on the lips, forever on the hips'... forever the bl@@dy boring nasty quips? Make that appointment Dom :) love kittycatx
kittycat
 
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Joined: Mon Aug 16, 2010 9:19 pm

Re: Hi

Postby Dom » Fri Apr 15, 2011 10:36 pm

I'm going to try and make that appointment as soon as i can, i have Study Leave coming up soon, so i'll try and book myself in during that time, so my Mum won't know until i tell her the results.

It is a hard thing to do for me, to make that Phone Call, i'm quite shy sometimes, and always have been. This time i'll actually make the call. I have to.

Hopefully they'll have some sort of medical breakthrough soon! So people like us don't have to stick with a boring diet, or suffer in silence.
Dom
 
Posts: 10
Joined: Fri Apr 15, 2011 6:17 pm

Re: Hi

Postby kittycat » Mon Apr 18, 2011 9:35 pm

You're bound to be shy at 15...and bolshie and full of it, on alternate days. We all were....but you sound very sensible too. You really need to be referred to the specialist dietician because you're still growing, and need choline for your brain too. Don't put it off, it's only a phone call :D ..One step at a time..Kittyx Have your speech ready, in case doc thinks it's all in your head 8-)
kittycat
 
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