Im new

new to tmau.org.uk ?, say a big hello here.

Moderators: bigvern, admin

Im new

Postby Teddybear » Wed Feb 16, 2011 8:10 pm

Hi All

I have finally plucked up the gutts to write to you all. Im a 29 female married with two beautiful children. My husband recons I dont smell & my parents think im mad. They said they would of told me if I did smell. From the age of maybe 19/20 I have had only 5 or 6 comments, never to my face but from people around me saying they can smell fish.I could never smell anything only normal body smells so I never replyed to these comment, I just acted like I never heard them but deep down I knew they where talking about me. I convinced myself the smell came from down below so I never wear skirts, dresses, shorts. I did go to the doctors & said I smell of fish so they done swopes which came saying anything was fine. Years have pasted & I managed to put the fishy comments behind me untill I watched embarrassing bodies & new at once I had this problem. Again I plucked up the gutts to go to the doctors. I told her about the program & that I think I have it. She thought I was mad but she let me do the test. I did the urine sample. I ate as normal & drunk as normal when I gave the sample. 4 weeks later the results came back.

Urine creatinine - 14.3
Trimethylamine (TMA) - 39.9
TMA-n-Oxide - 705.0
TMA/TMA-n-Oxide - 0.06
Nigel Manning reports I have TMAU2 an overgrowth of bacterial in the gut.
I had to take a weeks course of metronidazole, wait 2 weeks then do another urine sample, again eating & drinking as normal.

4 weeks later my results have come back
Urine creatinine - 17.9
Trimethylamine - (TMA) - 6.8
TMA-n-Oxide - 29.6
TMA/TMA-n-Oxide - 0.23
He now says that the TMA excretion is now normal. The antibiotics have worked & that an eradication of enterobacterial overgrowth may have occured.

I am glad I have taken these tests but I am still very confussed. Do these results mean im cured? Does it mean I dont smell anymore? Is it safe to eat what I want? Will the overgrowth come back? Will I smell again? I have asked all these questions but my doctor wasnt any help. I have read may of these posts you have been posting but I am still confused.

Please help.
Love
Teddybear
Teddybear
 
Posts: 6
Joined: Wed Feb 16, 2011 7:20 pm

Re: Im new

Postby PoetFire » Thu Feb 17, 2011 3:41 am

Hi Teddybear. It does indeed seem to mean you are 'cured' according to Sheffields testing range. You do not appear to be a genetic case of TMAU, and presumably prone to overgrowth of the bacteria that produces TMA. It's probably a case of keeping the bacteria down for you. And you didn't have to follow the diet. It's the same situation as those prone to bacterial vaginosis. It wouldn't surprise me if it's the same bacteria responsible.

The way you did the testing is the ideal way, especially for seccondary TMAU cases. To test again 4 weeks later, you could see the obvious improvement. Obviously not easy unless the GP pays for the testing.

The ideal monitoring looks to be to either wait until there is another incident or test occasionally, and if your levels are high again then you could take metronidazole for a while, or so it seems from how you reduced it this time

Congratulations
PoetFire
 
Posts: 320
Joined: Fri Jan 15, 2010 10:23 am

Re: Im new

Postby kittycat » Thu Feb 17, 2011 12:54 pm

Hi Teddybear...This site is full of confused people whose family think they're mad. That's one of the frustrating aspects of this syndrome. Do you think you led a life that 'sheltered' you from nasty comments, or maybe your odour was always intermittent? I had intrusive personal treatments when I first started hearing complaints, because you tend to think that 'fishy' points to a feminine problem. It was only when someone stage-whispered 'It's her feet!' and someone else slammed a foot deodorant on my desk, that the penny dropped...You had a very good result :D but my TMA is lower than yours and I still 'think?' :? I hear comments when I'm hot and nervous...I've got an appt with a gastro Dr in March and he was having my sample tested again for TMA at Sheffield, and another one in the lab by the biochemist at the hospital, as it's possible I've got something else as well. Who knows? Are you taking a good quality probiotic every day? That could well keep your gut flora from ever causing you problems again....Good luck, hope you let us all know how you get on..kittycatx
kittycat
 
Posts: 467
Joined: Mon Aug 16, 2010 9:19 pm

Re: Im new

Postby Teddybear » Thu Feb 17, 2011 6:42 pm

Hi There
Thank you so much for replying, I no it sounds mad but I feel beter in myself for writing on this website. Its nice to read & talk to people who knows what im talking about.
Im taking a Miller Vitality low fat yogurt drink & multibionta probiotic multivitamin tablet every morning. I dont know if these are the right ones to take but they are the cheapest probiotic things I can find. I have read comments on ones you all are taking but they seem really expensive. My doctor wasnt very helpful either, she just told me to carry one how I was. Easy for her to say!

Love
Teddybear
Teddybear
 
Posts: 6
Joined: Wed Feb 16, 2011 7:20 pm

Re: Im new

Postby miles » Sun Feb 20, 2011 10:51 pm

Hi Teddybear

Thats great news you got your TMA down to normal levels congrats on the point about probiotics the specialist i have seen before recommended that i just use the Boots own brand probiotics as the specialist felt they were as effective as the more expensive ones unfortunatly for me i have a cupboards full of so many crappy tmau products that just dont work :lol: plus not enough hours in the day to take them all :roll:
Your Doctor sounds same as mine lucky for all of us we have these forums

Best Regards

Miles
miles
 
Posts: 12
Joined: Tue Feb 15, 2011 6:49 pm

Re: Im new

Postby Teddybear » Mon Feb 21, 2011 7:07 pm

Hi Miles
Thank you for that. I shall try them.

Could you tell me the exact name of the ones you have please.

Love
Teddybear
Teddybear
 
Posts: 6
Joined: Wed Feb 16, 2011 7:20 pm

Re: Im new

Postby smelly » Sat Mar 05, 2011 10:51 pm

Hi Teddybear,

yours is the first case Ive heard of where someone has been cured! We will use you as an experimental model 8-)

When you say you ate 'normally' before the test do you know what you ate (things that are known to be high choline for example, which most people would eat normally?) and again when you tested second time? Also did you notice when in your menstrual cycle you took 2 tests because you might be affected heavily by your hormones. i had 2 completely different test results when taken at different points in cycle, so im thinking mine is hormonal influenced, maybe yours also. Girl on embarrassing bodies managed to reduce her levels by strict diet for 2 out of 4 weeks of month, but doesnt seem to help with mine, those pescy hormones rule no matter what :twisted:
smelly
 
Posts: 426
Joined: Wed Dec 09, 2009 7:49 pm

Re: Im new

Postby smelly » Sat Mar 05, 2011 11:19 pm

Thinking about the fact your husband and parents say that they cant detect an odour, that is probably the same for everyone. my feeling is that IF your parents CAN smell something they dont want to admit it because then you will want to know when they first noticed and there will be recriminations about why they didnt say anything. They might even feel they are to blame somehow if its something that has come and gone throughout your life from a young age. Same for husband. No one wants to be the first to say anything. And i hate to say it but if anyone close to you has sought medical advice about it, they will have been told to play it down when you ask. id love someone from a medical background to deny that, but unfortunately i think its true.

the people who have been most honest with me hate me with a passion, so not concerned about hurting my feelings. :lol:

I would say our partners likely dont smell us as much as others otherwize why would they be there when they have a choice? (family have no choice!) I think the detection of odour can be heavily influenced by others. My husband didnt detect much i think, but gradually over the years as his parents have been less and less subtle, to the point of talking about me when Im sitting 6 feet away, he now seems to be quite badly affected by it. he knows i cant control it and have fought for a decade just to get a diagnosis, and will be one of the first to find a cure if there is one! so he doesnt make a big deal of it to me directly, but his reactions have definately got more exaggerated in step with his parents discussion of it.
smelly
 
Posts: 426
Joined: Wed Dec 09, 2009 7:49 pm

Re: Im new

Postby lyndsey » Fri Mar 11, 2011 1:20 am

Hi Smelly

Thats awful about you husbands parents how rude!!! I agree people that care dont want to tell you, my mum says she doesnt smell anything but at times sits with her hand over her nose, but she is so soft dont think she wants to hurt my feelings. I think if someone was just straight with you it would help because then you could work out what you had been eating and maybe find the answers. I can smell myself around period but then the odd wiff but thats it and judging by others they smell it alot worse than I do. Glad to see you back on missed your humour.


Lyndsey xxx
lyndsey
 
Posts: 170
Joined: Tue Jul 20, 2010 5:01 pm

Re: Im new

Postby kittycat » Fri Mar 11, 2011 11:29 am

It's bad enough when colleagues gang up on you, without the in-laws as well! At work there's always bullies who start everyone off, and they all join in, relieved that they're not the victim. With in-laws, do we think it might be the 'no-one's good enough for my child/they could have done so much better' attitude? love kkx
kittycat
 
Posts: 467
Joined: Mon Aug 16, 2010 9:19 pm


Return to new members, introductions & greetings !!

Who is online

Users browsing this forum: No registered users and 1 guest