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Postby flower » Wed Nov 17, 2010 2:19 pm

I am new to this forum. I am a woman of 35 years old. I am from Europe and Nigel Manning diagnosed me with tmau 2. I have a very understanding husband and two fantastic kids.
I only thought there was something wrong with me because colleges at the office complains of a bad odour. At least I mentioned that they all were talking about me.
I can not detect the odour on myself. My husband and daughter never complains about me. My little sun remarks sometimes that there is something smelling but he is very lovely and he thinks everything is normal. I don t want to write all the painfull details. So I went to my GP a few years ago and I finally got the diagnosis on november 4.
Is it true that maybe when I take the antibiotics that I haven t tmau anymore and it will never get back or is it something for my whole life ?
I have told to my colleges two of them that I have this diagnoses but they said they could not detect it on me ? I am very confused. I have told it to my younghest sister and she said also that she can not smell it. I am confused but the results are showing tmau 2
I ask myself if I have the right to work in the office or must I leave my job. I don t want that other people must suffer and have bad smells because of me. I don t know what to do. Sometimes I think that I must go and go for another job where I have not so much contact with other people.
flower
 
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Hi

Postby flower » Thu Nov 18, 2010 10:46 am

Hi,
I found this website a time ago.
I am from Belgium and I think there is no forum.
I don' t know if there are other people in Belgium with tmau.
I don 't speak the language often.
My GP says that I am the only one with a positive result for sec tmau he knows in Belgium.

Is it a problem to come on this website ?

Flower
flower
 
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Re: new member

Postby idealist » Thu Nov 18, 2010 3:29 pm

flower wrote:I am new to this forum. I am a woman of 35 years old. I am from Europe and Nigel Manning diagnosed me with tmau 2. I have a very understanding husband and two fantastic kids.
I only thought there was something wrong with me because colleges at the office complains of a bad odour. At least I mentioned that they all were talking about me.
I can not detect the odour on myself. My husband and daughter never complains about me. My little sun remarks sometimes that there is something smelling but he is very lovely and he thinks everything is normal. I don t want to write all the painfull details. So I went to my GP a few years ago and I finally got the diagnosis on november 4.
Is it true that maybe when I take the antibiotics that I haven t tmau anymore and it will never get back or is it something for my whole life ?
I have told to my colleges two of them that I have this diagnoses but they said they could not detect it on me ? I am very confused. I have told it to my younghest sister and she said also that she can not smell it. I am confused but the results are showing tmau 2
I ask myself if I have the right to work in the office or must I leave my job. I don t want that other people must suffer and have bad smells because of me. I don t know what to do. Sometimes I think that I must go and go for another job where I have not so much contact with other people.



Hi Flower,
Love the name :D
Okay about the work situation. A former boss of mine use to act as if I smelt, she could not bear to be around me. Anyway when I confronted her she lied and said, no and that it was all in my mind but she was just lying. She told me before that she lies because she is a coward and does not want to upset :roll: I also had a lovely Counsellor who would occasionally hold her hand over her noses when I would speak. Again I asked her and she said it was in my mind and told me this (slightly fictional) story of a girl named Victoria (a former patient) who believed she was ugly but she wasn't. She believed I had OCD just like this Victoria girl but again this was a lie.

I am not saying that everyone is lying because some people really cannot smell anything. Others can only smell you occasionally but then there are some people who are sensitive to smell and it their mission to sniff you/us out. :roll: People are okay to imply that a person smells but they do not want to really hurt you so most people tell a white lie!

I have never left a job because I have smelt but I have changed jobs. I am in the process of doing just that (keep a look out in the topic/subject titled working; I will be making a post soon.) If you leave make sure you have another job lined up that will suit your needs as well as benefitting others. AlI the jobs I have had (minus one) were jobs that gave me contact with people.

We all understand here. I was going to give up University but I spoke to another member and it gave me hope. Sometimes you need to take a break and figure out your life. Are you in a job that suits your needs? If staff members say you don't smell then what is the problem? They say there is no problem so why not indulge in their lie and continue in your job? If they told you that you smelled then that is a different subject. Just humour them but if it bothers you talk to your husband. Can you afford to leave your job? What do you really want to do? Think about the bigger picture but don't think too much. Remember to go for a job that benefits all not just the people you work with.

Keep us updated x
idealist
 
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thank you idealist

Postby flower » Thu Nov 18, 2010 5:52 pm

Thank you very much for your reply. I like it. I must think about everything. What I am going tot do in live....
I don't want people suffer from me...
I am a happy person most of the time. I am really happy when I go out with some good girlfriends. I can really enjoy it
and I thank them that they will accept me. I know they ask me not always but I didn 't mind. I am glad when I can contact them when they want me and the moments that they not ask me I can forgiv them. I don't know if they can smell me but I am not going to ask them at the moment.
I am already very shamed that I told it to some colleges on my work. I think everyone knows it at the moment because
people talk and talk... but I think they all know it very long so...
I am also happy that I have my husband and my kids and my family. We are a very close family and they are not leaving me...
I can't not live with lies anymore(not telling this is also a lie I think but I wouldnt told it when I need the money so much for my kids and to live for) and two weeks ago I really know that I have this and I have told it at my work. It feels better not to lie but maybe I have lied a lot of years but I wasn't sure I had this. The genetic test was negative. They tested me only for one gen FMO3. The GP said that he didn't want to do the whole thing because it cost a lot of money for the clinic. My urine was also tested in the Netherlands but the test was not sure that I had it. It is another technic that they use. The GP couldn 't say with 100 procent that I had it... So I went to UK...

The only thing that will be the worst of my life is that my beautiful daughter have to suffer too from tmau. She is thirteen and today she has her periods for the first time.
She has very good results at school. She's best of class, good in ballet, music, everything.....but sometimes I think there is a sweet smell in her room but I really hope this is really in my mind. I can go on with people treating me bad ( most of the people are very kind ) but when my daughter must suffer of this I stand up for her and I do everything what I can do for her....

Thanks again for answering me. It is very kind.
Flower
flower
 
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Re: new member

Postby magsie » Thu Nov 18, 2010 9:47 pm

Hi Flower,
I also have a diagnosis of TMAU2 and I work in an office too.

I began the low choline diet in February and have managed to keep my odour under control by not eating eggs,fish,red meat, soya products, beans, and I no longer have green veg like broccoli,cabbage, spinnach, due to their choline and sulphur content. I also dont have any onion,garlic, curry or any spicy foods.

Stress makes odours more likely to occur & some people cannot smell our odours. So that's why we're more likely to be bothered in the workplace. Upon getting a diagnosis aged 53 - suffered since 13 & doctors failed to understand the issue or thought it was all in my head & that my colleagues were'nt really being nasty towards me!
I tried bringing up subject with my manager at work & proferred a copy of my diagnosis report, she didn't touch the paperwork, said I was mistaken that they were talking about the hyper hydrosis sufferer & they only smell perfume coming from me! Yeah right... so many comments & snide remarks, but due to embarrassment they refuse to accept explanations and brush it aside.

A guy took his firm to court because of his flatulence they sacked him, but it was a side effect of his medication & he'd got info leaflet as proof, court found in his favour.

Antibiotics, well I took copy of my diagnosis to GP & got 1 course of antibiotics but found they did not help me,
but you might be lucky. Some people take several courses of antibiotics each year along with some probiotics.

If I were to eat some fish I'd have a bad odour the next day, so I'm not cured. I just have to control my diet at all times in order to remain odour free.
magsie
 
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Hi Magsie

Postby flower » Fri Nov 19, 2010 11:07 am

Nice tot meet you Magsie. I got a course antibiotics too. I don' t know if it works.
I am going to take things how they come.
I will follow the diet, thanks for the advice.
Maybe things will go better....
Things will be what they be...
When I can hold my job, I will be very happy.
When I have to leave.....I will see......
We must all look forwards and think positive because negative thaughts are making us mad...

I am very happy with this forum and the very kind people

Flower
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Re: new member

Postby kittycat » Mon Nov 22, 2010 11:30 pm

Hi flower
I'm glad you've decided not to leave your job. They must like you, and now you've told them the problem at least they know you are not just unwashed, and are very upset about it. With your daughter, do you think she could take probiotics yet? (Especially if she has to take antibiotics). I looked at mine but there's no age guide in the instructions. love kittycat
kittycat
 
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Re: new member

Postby lyndsey » Wed Nov 24, 2010 8:18 am

Hi Flower

Welcome to this website its great dont know what I would do without the support I receive from here some days. I would do what Kittycat says and start your wee daughter on probiotics as that is what I have started to give my child who is suffering from bad breath at min.

Take care

Lyndsey x
lyndsey
 
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the point of acceptation

Postby flower » Thu Nov 25, 2010 10:13 am

thanks Lindsay,

I don t know if my daughter has tmau too. I hope she has not....can also be she is in her teener ages and her behaviour at school can changes....she is wonderful. I hope she will not have this too.

Maybe I have a really strange way of thinking and I must go to seek psychological health. do you think I must do that....

I am coming so far that I am coming tot the point of acceptation of tmau...
We are human beings so we must accept us the way we are...
We all have our destiny...
I thank God for also the beautiful things there are in live too....

When the results of my second test are sky high again I must go to the specialist to ask what I must do . If I better find another job with less human contact I will do it.
I have the luck that we can effort this....My husband has a job and he works days of more then ten ours because he works for himself....He loves his work very much....so
I have the luck that it is not a must going working, ...

When I have to leave my job I will lose a lot of wonderful people...;
I especially miss the two men of the administration. ...because they always make jokes and humour us .....but I can really see they have the biggest heart of the world.
They are talking with everybody, the bigs and the litlle, handicapted or not, beautiful or ugly, they are very great people....

I know once he said something and it was trough that I first realised that there was something wrong with me...

Because he was saying in public 'everybody knows what we are talking about and I felt wow they must be talking about me and I was a little bit shocked but I asked myself what are they are talking about me.....

Once , we had a communication of something with fish and he said we have enough fish here , the fishy smell we use to be here in het house....

But I like him and its a releaving to say things like that and I can feel in a way he loves me en will miss me too....and in a way I love him the most....

People hates us and love us , they hate us because of our smell and they loves us because of what we are...
hate and love are very close to each other
The intensity of the word only changes

And I think disaster of nature is a very good description because it is not the way that nature is used to be...
and it can be really a disaster for us and the people we are living with....
I hope other people once can forgiv me for the influence it has on their lives too....

And it is not because of we don t hear support of some close people they don t love us
This are the people who are the most upset and who have it the most difficult and they have
it difficult to place this, and the people who dont easy talk about feelings....Maybe they are the ones who don t get self to the point of acception
and maybe they could also not accept that their own child is handicapted....or has other things. most men didn t talk about their feelings and can not
give this a place in their live that everything is not perfect....

What the mission is of God by having this disease it is not clear....
Maybe there are things in live were we hasnt and answer for yet....

People who find that I have strange thoughts , they must not read is, I was thinking that I can accept it now and do everything what is possible to reduce the odour so that I can have an almost normal live, .....but today my coworker said maybe i must go to a psycholocical helper to give it all a place....

I am going forwards with my life .....
Flower

So I can really understand that people must show their emotions too.

I am thinking I must be a serious case of tmau

Also heard someone saying once 'disaster of nature '
flower
 
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Re: new member

Postby F.Sputnik » Mon Aug 31, 2015 2:09 pm

Hi Flower,

My name is Flo and I work as an editor at the Belgian television production company Sputnik Media (www.sputnik.be). (As I am Belgian too, you can talk to me in Dutch if you want to, no problem! Just for now, I am writing this reply in English, so everybody can understand what I am writing here.)

At Sputnik, we are currently working on a new documentary about looks and personal hygiene. A Belgian public figure will conduct a special experiment: although she is quite concerned about her looks and appearance, she won't clean herself, won't wash her hair and body, won't use any cosmetics etc during a whole month... During the documentary, this public figure/our host will also meet some very interesting people with intriguing stories: people who are confronted with erroneous preconceptions about their looks and hygiene.

Therefore, it would be so great if we could arrange a meeting between our host and someone with TMAU. We would like to inform our viewers about this syndrome, to open a dialogue... The documentary is a counter-reaction against the aesthetic perfectionism of today. We would like to reduce prejudices by informing people.

Therefore, I am hoping you could help us with that... Do you think you want to join this documentary? And if not, or if you have any questions, would it be okay to contact you so we can ask you some questions about TMAU and your experiences? It would be so great to hear from you.

You can e-mail me via flo@sputnik.be. If you have any doubts or questions: please don't hesitate to contact me: I will be happy to help you.

Also other people with TMAU can contact me via mail! Although we kind of prefer to arrange a meeting with someone from Belgium too, every story is important to us, so please let me know ;)

Kind regards to all of you,

Flo
---
editor at Sputnik Media Belgium
flo@sputnik.be
F.Sputnik
 
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