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Hi everyone! I'm new here!

PostPosted: Thu Mar 31, 2016 7:58 pm
by Robby81s
Wow! Where do I start?
I thought I was the only one living with this hell!
I've basically smelled for aslong as I can remember,all through school and into adult life
I'm now 35 and have had to listen to the sneering,coughing,back stabbing from supposed friends
To the day to day awkward moments! I find it gets worse when I'm anxious or under pressure!
I've tried so many different things but never come across a cure! My doctor doesn't believe me
And am running out of ideas!i just want to be normal which I've never experienced, I'm so glad I've
Come across this site and watching that lady on this morning tv going through everything I've experienced
Brought a tear to my eye.

Re: Hi everyone! I'm new here!

PostPosted: Fri Apr 01, 2016 9:21 am
by Lisa
Hello Robby,
Welcome to the group.
Are you getting tested?

Re: Hi everyone! I'm new here!

PostPosted: Fri Apr 01, 2016 12:36 pm
by Robby81s
Hi! I spoke to my doctor today and explained about this site as he had never heard of it!
He's not sure if the nhs will pay for the test and that I may have to pay myself,which I will if I get some kind
Of answer! Fingers crossed!!!

Re: Hi everyone! I'm new here!

PostPosted: Fri Apr 01, 2016 12:41 pm
by Lisa
Keep us updated, and Good Luck!

Re: Hi everyone! I'm new here!

PostPosted: Fri Apr 01, 2016 6:16 pm
by PoetFire
Welcome Robbie

Many do the test via the NHSA but if your GP won't sanction it then you could ask them to let you pay.
It's about £137 via Sheffield Children's Hospital

If you are in London you could ask to be referred to Dr Robin Lachmann at the Charles Dent Adult Metabolism Unit
Also metabolic units are aware of TMAU at Bristol, Birmingham, Manchester, Glasgow, Cardiff and maybe a few others