Page 1 of 1

I'm new

PostPosted: Thu May 28, 2015 11:03 pm
by yvette
For the first time in my life I'm now signed up to be part of a group and it feels wonderful and upsetting at the same time. Until two weeks ago I had no idea that the problem I have had a name (apart from smelly!!!). I thought I'd feel happier knowing but for some reason I don't! It's a bit of a nightmare. I'm 55 by the way. The only person I've spoken about this to was a Doctor 25 years ago so if anyone would like a chat anytime I'm available, just don't stand downwind. Luv to you all. Kaye

Re: I'm new

PostPosted: Sat Sep 05, 2015 11:40 pm
by Oneneo
Hi Kaye,
I've been suffering this for about 25 years as well. I'm male 39, and I'm still seeking some kind of diagnosis, but keep getting told there's nothing wrong with me, so a bit exhausted with everything. I've tried to reach out to this community but it doesn't seem to be very busy. anyway I hope your coping well and would be happy share the struggle

All the best

Re: I'm new

PostPosted: Thu Sep 10, 2015 8:11 pm
by Knits
Hi Kaye I'm female 32 and have known what I have for 8 years now it's been a tough learning
Journey but learning how to live with it the best I can for now until we r cured and one day it will happen if we all believe it. Positivity to all us out there x