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Newsapaper request for TMAU Volunteer

PostPosted: Mon Aug 08, 2011 9:23 am
by admin
Hi all,

Please see below request


Another chance for media coverage of TMAU, hopefully someone may come forward !

Please respond directly to the requestor.

1) Newspaper story

Hi there

We are looking for a case study who might want to do a story to raise awareness of TMAU.

We are a national news agency who would distribute the story to all the national papers.

Do you know of anyone who might want to do this with us?


Tammy Hughes

Re: Newsapaper request for TMAU Volunteer

PostPosted: Thu Aug 11, 2011 7:49 am
by malory

These are brilliant opportunities to help raise awareness. I can't do them as I'm in the process of doing 'Chat' magazine's article plus it can't always be the same face representing tmau as this reinforces the view that tmau is an extremely rare condition able to be ignored.

I was terrified of going on ITV This Morning and wanted to refuse.
After I did it, however, I felt a sense of relief, accomplishment and empowerment. I actually enjoyed the experience and seeing how live tv works and I was treated well. Similarly with 'Chat' magazine, I am enjoying the experience and have been promised that the article will be read back prior to publication.

We must be wary of the media but it is our only chance of raising awareness. I have been pleasantly surprised by my media experiences and hope that you will too if you volunteer for it.

The channel 4 documentary which will now accept anyone with tmau (not just newly diagnosed)?

... a specialist factual series for C4 called
'Food Hospital'. The series is looking at how specific diets impact (and in
some cases cure) certain conditions.

We are interested in metabolic diseases and would very much like to feature
TMAU in order to raise awareness of the condition. Once again we have Robin
Lachmann on board to offer his expert support.

The contributor would come to the Food Hospital and see our expert team and
Robin Lachmann to receive the best dietary advise and support in order to
treat their odour.

Sue Edwards

assistant producer