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never forget to be creative !

PostPosted: Sun Mar 11, 2012 8:04 pm
by flower
Never forget to be creative and to search for the best way !

We all know the problems what tmau is causing in socialising, jobs, …… and we have all a good reason to feel how we are feeling....

I agree with the fact that I have to diet, I am even shamed I don’t do the diet seriously every day….. I think I just wasn’t able….. just the shock that I have this …. makes me sometimes weak and anxious, ….. I think I had a really deep depression….. but I simply didn’t wanted to be depressed…..

But do we have any suggestions. What can we do that there will be come more research… and a real cure ?
I will do everything what is in my power, even if I have to go through the deepest pain….
As long as the future generation has not to suffer….

What have we to do ? We can’t live separately of the rest of the world…..

Maybe we can make a list of suggestions…:
some professions,
….things what we think that really helps us,
things what can give hope….

And the video is really amazing…. It’s creative….and it gives hope !.... but we have to look for more suggestions… and being creative and inventive is the best way !

At least I am glad I have a partner never complaining just once about my odor, and my kids are giving me hope…. I just trust my children for more than hundred procent, even maybe my daughter has tmau too…..

Lets find things what can help…. We are not alone….


Re: never forget to be creative !

PostPosted: Mon Mar 12, 2012 4:17 pm
by idealist
Hey Flower,

I hope you are well and life is treating you kindly :D
You mention a video ...What video is this? where can I watch it?

I think the way to go get peoples attention is to highlight the problem this condition has on children..... This condition is not one that many people will be willing to associate their names to (such as celebrities and so forth). Of course all the work Malory is suggesting is also important but more entices should be on children.

I think you had perviously mentioned a cookbook,it would be great if someone could/would write one.

ps-I meant to say that more in 'emphasis' should be placed on childern....

Hi flower, I am good thanks....I think the forum can make many of us feel sad and upset but it can also be very uplifting (your post is an example *of* that) :D

Re: never forget to be creative !

PostPosted: Mon Mar 12, 2012 8:43 pm
by flower
Thank you, I am well.

I think I read too much on the forum.....makes me upset sometimes...

But being upset makes me do the diet again....

Hope you are fine too !