Dr. Lachmann

antibiotics, nullo etc. - what works for you?

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Dr. Lachmann

Postby Lisa » Fri Oct 08, 2010 11:18 am

I'm going to see him next week. Has anyone else been to see him? Will I be tested again? In limbo atm. Will he be able to tell me what "type" of TMAU I have? As I've said before, my GP is useless. I need to know if I need a DNA test/ blood test? Can anyone help please?
Lisa
 
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Re: Dr. Lachmann

Postby SmellyKelly2 » Fri Oct 08, 2010 5:20 pm

Lisa
Do not know answers to your exact questions, but I know a member from body odour support has met him.
He said that you see a whole team of people and that it is really good.
Sorry do not know anymore.
SK
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Re: Dr. Lachmann

Postby Lisa » Fri Oct 08, 2010 5:27 pm

Thanks anyhoo Kelly, a whole team of people? OMG. :oops: lol
Lisa
 
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Re: Dr. Lachmann

Postby BLUEY » Sun Oct 10, 2010 8:48 pm

Hi Lisa,

Before you go to see Dr Latchman the hospital should contact you beforehand and will ask you to load up on high choline foods and bring a 24hr urine sample with you which should be in a acid washed container. He will ask you questions such as your symptoms and how are you getting on day to day etc, there should be some dieticians present also to give you a diet sheet and answer any question you may have. You wont get the result till your next visit which could be a couple of months, but he will tell you if you have tmau and what type. I know when i was last up there he seemed fairly busy, i think cause of the coverage tmau has had latley alot more people have found the will and strength to come foward which i think is great as none of us should have to suffer in silence and have hope and the right tools to be able to live our lifes to the full. Hope this has been useful to you.

Kind regards

Bluey
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Re: Dr. Lachmann

Postby smelly » Mon Oct 11, 2010 8:22 pm

Lisa,

I have read elsewhere that the DNA test is to see if its a genetic problem, so you can be aware of maybe passing it on to children etc. I think the treatment for TMAU is the same no matter whether its genetic or not (TMAU 1 or 2) so if there isnt a family issue with the disease they probably wont want to test you because its pretty expensive.
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Re: Dr. Lachmann

Postby smelly » Mon Oct 11, 2010 8:54 pm

Lisa (and any other members who've been to see specialists in TMAU)

When you see Dr Lachmann....just if you remember....could you let us know if 'the team' test you for general nutritional deficiencies? Not really sure what they would be, anaemia? scurvy? rickets??? heeeheeee but Im thinking because we are avoiding so many 'good' foods..... and since dr Lachmann is THE MAN on this condition it would be helpful to know if this is a routine test he does, and if this low choline diet can have a testable affect on our health......Im thinking he maybe tests for TMAU, youve got it, you go on the low choline diet, does he then test for nutritionall deficiencies, and come back to you and say 'eat more brussel sprouts because your iron levels are low'.....know what I mean??? :| :?
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Re: Dr. Lachmann

Postby BLUEY » Mon Oct 11, 2010 11:02 pm

From what i remember they take a blood test your weight and height as a general practice to get a idea of your health, i can remember Dr Latchman saying to me my nutritional health looked ok so the team must of looked into this with my blood test. I havent been asked for another blood test since ive been following there guidance, but i guess it wouldnt hurt to ask them if u wasnt feeling right or was just worrying about it. Lets be honest its not the greatest of diets to be on as in repsects of nutritional goodness so it would definatley be something i would keep an eye on!

Best wishes and kind regards

Bluey
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Re: Dr. Lachmann

Postby Lisa » Thu Oct 14, 2010 9:29 am

Hello y'all.
Been to see "him". Had BP, weight, height, pulse taken, along with blood test to see if there are any defiencies in vitamins etc, had 2nd urine sample, (free, :o ), results back in 6 wks. Said my liver working ok as respond well to antibiotics, so does'nt think it's the enzyme one. Have to have antibiotics every 6 wks, and keep on the diet. Saw a dietian too, gave me some more food ideas. (lost 3 pounds, so will be monitored every month or so). Hope this answers some of your Q's. He didnt really tell me anything different to what we all know, nothing new, or no miracle cure. :cry: The dietian did say that sometimes you can deviate from diet, tailor it to your needs etc, and imo, alittle bit of what you fancy aint gonna hurt you. Tbh, my app. seemed to be alittle rushed, one in, one out, obviously he is a very busy man, but it was good to see him, and now, hopefully, my GP can pull his finger out and start helping me. He now has all the info he needs, and now I know where I'm going, it makes for a happier, (but hungrier) me. :D
Lisa
 
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Re: Dr. Lachmann

Postby Lisa » Thu Oct 14, 2010 9:51 am

smelly wrote:Lisa (and any other members who've been to see specialists in TMAU)

When you see Dr Lachmann....just if you remember....could you let us know if 'the team' test you for general nutritional deficiencies? Not really sure what they would be, anaemia? scurvy? rickets??? heeeheeee but Im thinking because we are avoiding so many 'good' foods..... and since dr Lachmann is THE MAN on this condition it would be helpful to know if this is a routine test he does, and if this low choline diet can have a testable affect on our health......Im thinking he maybe tests for TMAU, youve got it, you go on the low choline diet, does he then test for nutritionall deficiencies, and come back to you and say 'eat more brussel sprouts because your iron levels are low'.....know what I mean??? :| :?

In answer to Q, yes, see above. x
Lisa
 
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Re: Dr. Lachmann

Postby shania12345 » Thu Oct 14, 2010 1:16 pm

Antibiotics every 6 weeks????? Doesn't that seem a bit much for you guys? With all the talk about resistance to antiobiotics,if you ever got sick and needed to take antibiotics,they might not do anything for you because your being prescribed them every 6 weeks. Sounds like he's trying to cure TMAU with antibiotics. Think twice before you take them that often. JMHO

Shania
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