Trimethylaminuria

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tmau - here to help....

IMPORTANT ANNOUNCEMENT - TMAU ON TV

Some time ago this website asked for a Volunteer for a Channel 4 feature on TMAU;

As a result of a courageous volunteer coming forward, Channel 4 Embarrassing Illnesses will be featuring TMAU (Trimethylaminuria) on Friday 5th March at 9pm on Channel 4.

I will update the website here if this date changes.

http://www.channel4embarrassingillnesses.com

Please note there are no details on the Channel 4 website yet, this info has come to me direct from the producer.

The series goes out on Weds for 3 weeks and then changes to Fridays!

Dr Lachmann will feature in the episode. There is an announcement in the forums about this, we can use that thread to discuss what we all thought?

 

Welcome to the tmau support website

Bringing together people who have Trimethylaminuria , their families, friends and healthcare professionals in a positive, caring and supportive environment.

Please use the polls so we can start to build a database which we can all use. If you have any ideas for the Polls please post them in the forum and I will pick them up from there.

There is a recently published and very well written paper on Trimethylaminuria that includes a summary, diagnosis and testing of TMAU.

Link: Trimethylaminuria Review

Please keep checking backing as we have some new information on testing and diagnosis which I will publish as soon as I get time.
Last Updated ( Wednesday, 06 January 2010 18:54 )
 

Diet Information - Useful Links !

Any diagnosed sufferers may be aware that a diet low in Choline is an important part of the management regime for Trimethylaminuria.

Read more...
 

What is TMAU ??

Trimethylaminuria (TMAU), also known as fish odour syndrome or fish malodour syndrome is a rare metabolic disorder where the body loses the ability to properly breakdown timethylamine (TMA) found in certain foods into timethylamine oxide (TMAO)

Read more...
 

Visit the Forum !

Congregate, share and chat...

Use the forum to share your experiences and read about others, don't be shy !!, we need to build a caring and supportive community so we can progress everyone's understanding of tmau.

 
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Newsflash !

Dr Manning is a Principal Clinical Scientist at Sheffield Children's Hospital and he has kindly agreed to answer some FAQs about TMAU

He is an expert in TMAU testing, so please post any questions about this in the forum thread 'FAQs for Dr Manning'

 


The producer has been in touch to say they have now found a volunteer to film as a direct result of posting on this website. I will update you with further details of dates / times when I get them.


 Dr. Lachmann, Consultant in Metabolic Medicine, has kindly answered a list of FAQs


I am also awaiting permission to publish some specifically formulated Meal Plans for TMAU

National Newspaper to write a feature on TMAU


 

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Polls

TMAU - Post-load TMA levels (not TMA-n-Oxide!)
 

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