Trimethylaminuria

The new UK support website

 
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tmau - here to help....

Welcome to the tmau support website

Bringing together people who have Trimethylaminuria , their families, friends and healthcare professionals in a positive, caring and supportive environment.

Please use the polls so we can start to build a database which we can all use. If you have any ideas for the Polls please post them in the forum and I will pick them up from there.

There is a recently published and very well written paper on Trimethylaminuria that includes a summary, diagnosis and testing of TMAU.

Link: Trimethylaminuria Review

Please keep checking backing as we have some new information on testing and diagnosis which I will publish as soon as I get time.
Last Updated ( Wednesday, 06 January 2010 18:54 )
 

What is TMAU ??

Trimethylaminuria (TMAU), also known as fish odour syndrome or fish malodour syndrome is a rare metabolic disorder where the body loses the ability to properly breakdown timethylamine (TMA) found in certain foods into timethylamine oxide (TMAO)

Read more...
 

Visit the Forum !

Congregate, share and chat...

Use the forum to share your experiences and read about others, don't be shy !!, we need to build a caring and supportive community so we can progress everyone's understanding of tmau.

 

Diet Information - Useful Links !

Any diagnosed sufferers may be aware that a diet low in Choline is an important part of the management regime for Trimethylaminuria.

Read more...
 

About the website

This Web site has been developed by myself, a fully diagnosed TMAU sufferer to promote a better understanding of Trimethylaminuria. 

I am developing the site in my spare time and will be looking for volunteers to help with this once the core of the site is set up!!

Read more...
 

Who's Online

We have 1 guest online

Newsflash !

Dr Manning is a Principal Clinical Scientist at Sheffield Children's Hospital and he has kindly agreed to answer some FAQs about TMAU

He is an expert in TMAU testing, so please post any questions about this in the forum thread 'FAQs for Dr Manning'

 


The producer has been in touch to say they have now found a volunteer to film as a direct result of posting on this website. I will update you with further details of dates / times when I get them.


 Dr. Lachmann, Consultant in Metabolic Medicine, has kindly answered a list of FAQs


I am also awaiting permission to publish some specifically formulated Meal Plans for TMAU

National Newspaper to write a feature on TMAU


 


Polls

TMAU - Post-load TMA levels (not TMA-n-Oxide!)